Financial Assistance
The costs incurred while undergoing treatment for Neuroblastoma are considerable. Often, the dynamics of balancing treatment and work are impossible for at least one wage earner, and if there are other children in the family, sometimes both parents will find they can no longer work. The expense of travel, accommodation, entertaining siblings and keeping the family fed while while at your cancer centre can and does cost a small fortune. At home, the side effects of chemotherapy can mean lots of extra laundry, hot water, sometimes even a separate washing machine, special mattress or pushchair are needed. The heating will be on a lot more, you may decide to adopt a plan that removes cancer agents from your home or opt for a new diet. The list goes on.
There are lots of tips and advice throughout this website to save you money. In this section we will try to give you further advice and contacts for specialist grants and organisations that may be of help to you. Not everything is available to everyone. Some help is dependant on household earnings and some is dependant on postcode.
By now you will probably have already met your Clicsargent worker and already had their diagnosis grant. They may also have told you about the family fund. We will start with the details of these anyway.
Clicsargent can provide you with an initial grant of £170 at diagnosis. Exceptional Grants. Community Support Grants and Compassionate Grants are also available to some. Clicsargent do not means test.
Your child will be entitled to the Highest rate of Disability Living Allowance. Being in receipt of DLA will also automatically entitle you to a variety of other grants and assistance and is a requirement for many.
The Family Fund can help with a wide variety of things, from cash for expenses, to mobile phones, days out, kitchen appliances and more. To qualify you must have a household income of less than £28,000 per year
This can save you a small fortune on parking and congestion charges, and is invaluable in terms of preferred parking.
If your child is under Two years of age, many councils will refuse your first application. However, if you highlight the rules on special application you will be issued your badge. If you find you have been refused a second time, please contact us and we will contact your council for you.
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*Special rules for children under two
A parent of a child who is less than two years old may apply
for a badge for their child if the child has a specific medical
condition which means that they:
a must always be accompanied by bulky medical equipment
which cannot be carried around without great difficulty;
and/or
b need to be kept near a vehicle at all times, so that they can,
if necessary, be treated in the vehicle, or quickly driven to a
place where they can be treated, such as a hospital.
If you live in London, please see the TfL information on Blue Badge's and the congestion charge here
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